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News Articles
Data
cleanliness - a pressing issue for trusts
Publications
Symposium on Health Data Linkage: Its value for Australian health policy
development and policy relevant research: Proceedings
Research use of linked health data – a best practice protocol.
C.W. Kelman and A.J. Bass,
Department of Health and Ageing, Canberra,
C.D.J. Holman,
Centre for Health Services Research,
Department of Public Health,
The University of Western Australia
Presentations
Making the case for Data Matching- examples of positive outcomes
from WA - Dr John Bass,
University of Western
Australia
Data Matching - problems with names -
Dr Adrian Esterman, Flinders Centre for Epidemiology and Biostatistics
Comparison of Data Linkage Software
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Dr Adrian Esterman, Flinders Centre for Epidemiology and Biostatistics.
The Central Cancer Registry - Dr Wayne Clapton,
South Australian Department of Health
A taste of linkage
- A overview of how data linkage works
Benefits of data linkage
- Looks at the social, scientific, privacy, economic and future
benefits of data linkage.
Beyond linkage:Using linked data for policy-relevant research -
Data linkage in New South Wales
Centre for Health Record Linkage -
Data linkage in New South Wales
Data Linkage WA -
Data Linkage in Western Australia
National Collaborative Research Infrastructure Strategy -
Data Linkage in Australia
SA Data Linkage Consortium Stakeholders Seminar -
The presentation for SA Data Linkage Consortium Stakeholders
Seminar
The Lonely Planet Guide for Data Linkage -
Data Linkage in Western Australia
The South Australian Data Linkage System -
Data Linkage in South Australia
Research Studies using LinkageWiz
Even more research studies using LinkageWiz...
Useful Links
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California
HealthCare Foundation |
Independent research, analysis and news on
issues affecting health care delivery and financing from the California
HealthCare Foundation. |
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Data Quality Pro |
Data Quality Pro is your free expert resource providing data
quality articles, webinars, forums and tutorials from the world's leading
experts, every day |
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Eraser Software |
Free software
which
removes sensitive data from hard disks by
securely overwriting
the data. |
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HealthWiz |
HealthWiz is a national social health
database which
enables public access to health and other social and demographic data. |
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NHS Information Quality Assurance Programme |
The Information Quality Assurance Programme (IQAP)
was established by NHS National Programme for IT to ensure that guidance
documents are issued to advise the NHS and Local Service Providers of the
data quality related standards necessary for the NHS Care Records Service |
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Public
Health Evaluation Unit |
A Social Health Atlas of Australia (2nd
Edition). |
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Record
Linkage Overview |
A useful overview of Record Linkage from Wikipedia including
naming conventions, methods and history. |
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SA NT DataLink |
SA·NT DataLink provides a high quality data linkage service
to support research, policy development, service planning and evaluation. |
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Western Australian Data Linkage Unit |
The Data Linkage Branch at
the Department of Health
collaborates with the
Centre for Health Services Research at the University of Western
Australia, the Division of
Health Sciences at Curtin University of Technology, and the
Telethon Institute for Child Health
Research to provide information for valuable medical and population
health research.
The unit was
established in 1995 to develop and maintain a system of linkages connecting
data about health events for individuals in WA. The unit manages the Western
Australian Data Linkage System which links the WA's core population health
data sets. Operations depend on access to personal identifying information
derived from each of the contributing data sources, but the actual health
details are stored and managed separately by delegated data custodians.
These linkages are created and maintained using rigorous, internationally
accepted privacy preserving protocols, probabilistic matching and extensive
clerical review. Health data can be requested for ethically approved
research, planning and evaluation projects which aim to improve the health
of Western Australians.
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British
Columbia Linked Health Database |
CHSPR has a proud history as a partner in the
development of the BC Linked Health Database (BCLHD), known as one of the
world’s largest collections of health care and population health data. |
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Centre for
Health Record Linkage (NSW Australia) |
The Centre for Health Record Linkage (CheReL) was established in 2006 to
create and maintain a record linkage system for health and human services in
NSW and the ACT. |
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International
Health Data Linkage Network |
The aims of the International
Health Data Linkage network
are:
- To establish and
maintain an effective and useful network of
health data linkage centres
- To foster
collaboration and exchange programs between data
linkage centres
- To produce a
compendium of measurements based on linkage of
health data across Australia, Canada and the
United Kingdom
- To record the
outputs from health data linkage activities and
programs across the globe
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PHRN Centre - About Data Linkage |
Building data linkage infrastructure for Australia |
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Scottish
Medical Record Linkage System |
Scotland has some of the best health service data in the world. Few other
countries have information which combines high quality data, consistency,
national coverage and the ability to link data to allow patient based
analysis and follow up. Information Services Division (ISD) is Scotland's
national organisation for health information, statistics and IT services. |
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